Welcome to Teddy’s website.
Alexander and I created this site to keep friends and family updated on our little man’s progress.
Teddy’s story is more than just Menkes- it’s about trusting your gut as a mother, struggling to find strength to live another day, and how friends, family, and even strangers can lift you up in the worst of time.
Please share this with everyone you know because Teddy was put on this earth for a reason- and he’s not going to leave without making a difference.
We appreciate your support and words of hope and encouragement during this time when it matters most.
Mary Fish
Events & Updates
Love following your family! Prayers and healing thoughts being sent your way
This website is amazing! You and Alex are amazing! Teddy is amazing and so lucky to have you as his parents! I am so moved by your strength and courage. Because of you 10s of thousands of people now know what Menkes is and that number will only continue to grow. Simply incredible. We love you Fish Family.
Mary, Alex and Teddy, We think about you all every day and the fight you all are fighting. Teddy is an amazing little super hero, whom I look forward to the FB and Instagram photos of his handsome smile every day! Word can not express the heartbreak I felt when you told me, I remember that morning like it was yesterday. I tell your story to every person I can to help raise awareness in hopes that it brings a cure sooner rather than later. We hope to be able to make a trip to Boston after the little one arrives as we miss you all dearly!! Alyssa was playing with her little doll “baby Teddy” the other day…carted him around with her everywhere. You all are loved so much and have thousands of prayers going up for you daily!
We love you guys, huge hugs to all 3 of you!!!!
Love,
Angie, Jason, Alyssa and Little Xander
Hi Mary, Alex and Teddy,
Just a quick note to say WOW what a site this is!!! Teddy you warm my heart with every smile and those eyes!!! I pray that God will Bless you all each and everyday and hold you in the palm of his hand during the difficult times.!
Love
Jane
I just wanted you to know that you are amazing parents. i love all of Teddys pictures. My prays go out to you and your baby boy.
Great new website, will check all the time! Big hug for your little cutie pie…
New site looks great guys! Can’t wait to pay the special little guy another visit!
Mary, Alex, and Teddy
While I don’t know you personally, I follow your blog like I do- I even find myself telling people about your handsome Teddy! Having a son only a week younger than your precious baby, I can not fathom what you are going through. You show amazing strength even though every day is an emotional battle for you. Through your hard work, you certainly are doing what you set out to do- spread awareness about this terrible disease. I see it everywhere! Please know I think if you often and I am wishing you strength in the days to come. #teamteddy #fumenkes
HAPPY 1st BIRTHDAY SUPERTEDDY – WE LOVE YOU
Mary, Ales and Family,
I have been following your story and want you to know how sorry I am for your loss and heartache. You, Teddy and your family have been an inspiration to so many people… people you know and so many that you don’t know personally. Your mission to love Teddy to the fullest, and spread the word about the terrible Menkes Disease has been spread far and wide… and has inspired so many!! What a wonderful testament to the sweet and beautiful son you have to hold in your heart forever.
I will never forget you all and admire your mighty strength and furious fight through this heartbreaking journey!!
As a fellow family member who knows the heartbreak of Menkes, my sincerest condolences, hugs, love and warm thoughts are headed your way for always. Teddy’s strength, happiness, and wonderment amazed everyone around him, even those who had little knowledge. Such a tiny little hero, with a big lesson, and an even bigger heart. My warmest thoughts to you all at this time. We WILL beat this one day, and Teddy’s memory and legacy will always be a part of that. My love to you all.
Amy. Aunty of Menkes Angel, Carter.
Oh, Fish family. I am so, so sorry about the loss of your sweet baby. Though Teddy wasn’t with us for long, the legacy he leaves behind after just over a year on this Earth is one that will never be forgotten. His precious smile has melted hearts worldwide and brought awareness to a disease that many had never heard of before. Please know that you are being prayed for and thought of during this time. Fly high, sweet Teddy. You are a super hero to us all.
Mary, God bless you! Super Mom of Super Teddy. I really love him. No words have been created that will console right now. But you know how you leapt tall buildings for Teddy and destroyed Menkes obstacles that weighed him down. He gave you love and joy and you gave it right back to him. The fact that you shared him with us speaks to your generosity – we all love him. We all watched him and prayed for him and stood beside him. But no one like you Mom – Super Mom. I shall continue in prayer for you and for your family. The angel is now in Heaven and feeling no pain. I shared the news at work and we will be contributing to the Teddy Fund. I know Teddy will not be forgotten by any of us Mary, and neither will Alex and you. Deeply and warmly I hold you close. God bless you.
Kaye
A week later my thoughts are still with you and your family. Although, there no words to express how sorry I am for you loss I wanted to say thank you for sharing Teddy’s story. Your strength and love for your super hero is truly inspiring in so many ways and I will never forget you or your sweet boy. Sending love your way from Colorado.
I will keep Teddy, you and your family in my thoughts and prayers. Your journal has helped my cousin and her husband get through their sons battle with Krabbe. Thank you!
Good afternoon! I from Russia. I ask to change for grammar, I write through the translator because badly I know English). Your family is fine! At our son suspect Menkes’s syndrome ((((I read your records I represent that waits for us… It is very sad ((. Happiness to you and forces! ! !
I very much want to communicate with you. It is very heavy to keep this pain in itself. My address: dasmyrr@yandex.ru. I’ll be waiting
Thanks for another wonderful article. Where else could anybody get that kind of information in such an ideal way of writing? I have a presentation next week, and I’m on the look for such information. gaaaeggfaeaf
I HAVE A 27 YEAR OLD MENKES SON. HE IS THE LIGHT OF MY LIFE AND HAS BEEN EVERY SECOND OF HIS LIFE. I FEEL VERY BLESSED AND HONORED TO BE THE MOM OF SUCH A BRAVE AND SPECIAL BOY. TEDDY IS BLESSED TO HAVE SUCH WONDERFUL AND LOVING PARENTS.
PRAYERS AND HUGS FROM CHRISTOPHER AND MYSELF.
Hello.Is your son healthy.please tell me.we need to know it.my son is also menkes.he is 8 month old.
Строительно-риелторская фирма Пегас, ведет набор специалистов по аренде и продажи недвижимости, для работы на дому (работа на квоте). В офисе сидеть не нужно, работаете, полностью на “свой карман”! Мы организовываем вам доступ к базам Квартирный вопрос, Аренда-Питер, БАН СПб, НМаркет и EMLS, вам выдаются наши документы с логотипами и печатями агентства, возможность посещать офис для обсуждения условий и переговоров с клиентами, помимо этого, принимать платежи через расчетный счет агентства (от организаций). Если пожелаете, невозбраняется совмещать и заниматься как продажей, так и арендой недвижимости.
Наши условия (стоимость за месяц):
Тариф 300 руб:
– Доступ к базе Аренда-Питер;
– Доверенность;
– Агентское соглашение;
Пакет 500 руб:
– Доступ к базам БАН СПб, Аренда-Питер и Квартирный Вопрос;
– Доверенность;
– Агентское соглашение;
– Пять комплектов документов;
Комплект 1000 руб:
– Доступ к базам БАН СПБ, Аренда-Питер и Квартирнику;
– Доверенность;
– Агентское соглашение;
– Десять комплектов документов;
– Пять постановок в Квартирный Вопрос;
Внимание: 1 комплект документов – включает два договора найма + соглашение об оказании услуг + соглашение о разделе комиссии.
Дополнительные опции к пакетам:
Дополнительная публикация в базу “Квартирный Вопрос”: +100 руб.
Дополнительный комплект документов: +100 руб.
База Единая МультиЛистинговая Система: +1000 руб. мес.
База НМаркет: бесплатно!
Звоните: г. С-Петербург 8(951)661-51-20
¡Buenas tardes! I de Rusia. Le pido a cambiar en cuanto a gramática, escribo a través del traductor, porque mal que sé Inglés). Su familia está muy bien! A nuestro hijo el síndrome de Menkes sospechoso ((((leo sus registros que represento que nos espera … Es muy triste ((. La felicidad para usted y fuerzas!!!
Услуга слесарь-сантехник, русский, произвожу работы по ремонту, демонтажу, монтажу, подключению, замене и настройке сантехнического оборудования (унитаз, ванна, смеситель, стиральная машина, гофра, сифон и многое другое). Работаю в черте Санкт-Петербурга. Ценовая политика очень гибкая, ибо работаю один (без фирм и бригад). Если заказ быстрый, и за час управлюсь – то тариф 500 рублей… если объем работ достаточно велик, то договариваемся с заказчиком. Еще я, произвожу разводку труб горячего и холодного водоснабжения по квартире (металлопластик или полипропилен, на выбор заказчика). Звоните, не стесняйтесь, всегда можно договориться о цене! Тел: 89522848727
Accustomed Low-down Fro this by-product
If some one wants to be updated with most up-to-date technologies afterward he must be pay
a visit this site and be up to date daily.
???????,??????????! .
???????,??????????! .
???????,??????????! .
???????,??????????! .
???????,??????????! .
Tasty Metal Tuna
Up-sized
Nepalese Rupee
next generation
Gorgeous
Assurance
morph
Я заинтересован услугами которые предоставлены на вашем сайте. Пожалуйста, свяжитесь со мной по нижеуказанному номеру. 0098670012001
feed
Camp
Cheese
Sleek Cotton Chips
Chief
Associate
markets
Cotton
Future
Engineer
Ohio
lavender
white
Granite
deposit
Pants
primary
bypass
engineer
indexing
удалите,пожалуйста! .
robust
enable
invoice
invoice
Dynamic